It was a very chill day. Michancy has been staying with us for the weekend, along with Fran and Joel. Larry’s energy level was pretty low as is to be expected in the mornings and early afternoon. After I made some pancakes, and even Larry had some, Fran and Joel joined Jon, Alyssa, Stacey and Rachel for fun at the LA Zoo. I did not want to go as my lower back was still tight and walking that much is not comfortable. So Michancy and I stayed back (did yoga to help relieve my lower back and I think it helps) and hung out. Watched a lot of TV – Mandalorian, Castle Rock, and then ST:TNG. Good stuff. Got Chipotle for the crew, and then folks started streaming back home. It was nice. Sounds like the LA Zoo was a hit. Mila ended up coming over around 5 to visit, and it was a very nice evening. Larry’s energy was up by then, which was great. Played Scrabble w/ Michancy – I won. :-). Larry did a rendition of the Christopher Walken Census sketch from SNL and it was like, there he is, there’s Larry. He’s so skinny.
This was a fun day after Thanksgiving. No Black Friday craziness. Jon/Alyssa came over in the morning. Michancy, Jon & I went to Target, a pot dispensary, and a wine store to stock up on stuff. Then in the afternoon, we went to see Frozen 2 at the Universal AMC. Larry and Michancy stayed back. Frozen 2 was very fun. The first Frozen is still probably the better of the two, but undeniably entertaining regardless. In the evening, we played Pictionary, which Larry was able to enjoy too. Drank a good amount of wine that night.
Thanksgiving! This was a long day. It was raining fairly steadily that day, continuing the fun from yesterday’s intense amount of rain. Was able to relax in the morning but then went to go and pick up mom (Michancy came with) from Duarte for some Thanksgiving fun. Happily traffic in LA during Thanksgiving weekend is basically amazing, so no issues except for having to drive in lots of rain. Mom was ready, of course, with the way this year has been for her, it’s just sad to not see her the same as she was just a year ago. Regardless, got her back here. Nicki was here by then and she had brought an insane spread of food as appetizers. Insane. Every platter had individual labels. She’s too good for all of us.
Jon and Alyssa were flying in this day, as that was the only time they could get seats for all 4 of them (including Stacey and Rachel) together. So they weren’t coming in till later that day, so we ended up doing a bit of a 2-stage dinner as my mom just really isn’t able to relax or wait. Even though she had brought soup with her, and she ate it, it was already ‘when are we eating turkey’? I wonder if it’s social anxiety at this point and she doesn’t know how to deal with people anymore so she’d rather just eat and get it done with. Anyway, that’s what happened – we got the turkey heated up along with potatoes and green beans, and the food was great, but we had all been snacking on the spread Nicki had brought so I didn’t eat with her, although I sat with her. That was around 3, and once she ate, she basically was ready to go home. So Michancy & I drove her home and then we were back around 4:30 or so, and by then, Jon & Alyssa had arrived.
It was great to see everyone. We had a very nice dinner with everyone, with people spread out across the living room eating. So much for needing the card table – at least I was ready just in case. What was funny was that General Tso, Bugsy, and Tigger were very popular with Stacey and Rachel. Sveta then came over while we were all recovering and after Jon & Alyssa had left back to their hotel, which was nice.
I don’t remember what we did this day, honestly. I don’t think much at all? Larry had his pump. Fran and Joel did go out that evening to take care of Fran’s hair at a dry bar and then went to Cost Plus to get us some pillows for our dining room chairs – the cushions there are really worn down and putting a pillow on them to sit on really helps make them not so low. Joel tried to go to a Best Buy to find an adapter to use with his laptop to Larry’s monitors as he’s been using the office to work from which is great for him.
Went to Burbank UCLA clinic for Larry’s infusion – this was the first time we were back and the first available time for him to get the FolFox + Avastin there. We’ve stopped going to City of Hope as the emotional toll it takes on us is not worth going there and since we’re back on a standard regimen, it is nicer to go where we feel comfortable. Dr Arzoo saw him and it wasn’t good. He obviously saw how weak and jaundice Larry has become – and asked if he wanted to do this. It’s necessary to have a few treatments in place to see how it’s doing in his system – we all agreed let’s continue the fight if we can. Arzoo ended up reducing the intensity to not wreck Larry. It’s tough though – if he only gets worse over the next two weeks, Arzoo will likely stop treatment as it’s not worth it at that point. Larry & I spoke privately after that – I will not make him go through this pain and suffering if it isn’t going to help him. He understands that and agrees. Will remain to be seen if Fran agrees but I can’t imagine she would want him to suffer unnecessarily. We did end up getting a call from Dr Goldman, who is at UCLA conducting a clinical trial that Arzoo recommended him for. We meet with him on Monday, Dec 2 in Santa Monica. My back was still terrible this whole day. Nicki came over that night – we ordered Jerry’s Deli again as it really is amazing. We watched some TV all together. I thought I’d lie on the floor to put the big ice pack Joel bought me on my back, but I could NOT get up, and obviously Larry couldn’t get me. Had to get Joel to come and pull me up. Ugh.