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just a post on life

First Day of the Clinical Trial

Monday was the start of my last week of leave.  I finally got the process going for looking for a place for mom to go.  I ended up using links Mila sent me that connected me to A Place For Mom – and I’ve already spoken with some places in Tarzana.  Might go visit next week.  Mom is mostly on board, but I think she understands and gets that this isn’t a simple thing and is a big change.   Slow steps.

I found out my car had nothing wrong.  But I did learn that when you’re not actually using the A/C cooling feature in your car, you shouldn’t turn on the A/C Compressor.  Huh.  I did not know that.

Anyway, Monday was a chill day after that.  Shored up that we will be heading to Santa Monica on Wednesday, not Tuesday.

I met with a social worker that Mila set me up with on Monday afternoon. It’s a short term thing but will basically be some therapy for me.  I hope it can be something that helps.  I bet it will.

Tuesday – honestly a big day of nothing.  The three of us just hung out for most of it, got packed up for our 3 days in Santa Monica, as we are getting a hotel out there to avoid having to drive back and forth on that nightmarish 405.  We also got Arby’s – well, I went and drove to Reseda to get it and brought it back, and totally worth it.  Continued watching Mrs Maisel Season 3 and I also got my delivery of the Twin Peaks From Z to A box set, which has everything.  Everything.   And it’s got the pilot and Part 8 of theReturn on UHD – watched the pilot in UHD and it was great.

Wednesday – we got up bright and early and were able to get out to Santa Monica UCLA Health – the drive there sucked hard as even leaving at 9am for a 10:30am appt meant over an hour on the road.  Ugh.  The only activities happening today were to collect bloodwork for labs, and then to meet with Dr Goldman after he reviewed the results.   All of us had some stress that he was not going to continue the trial, but as of now, that isn’t the case.   Fran and I grabbed some lunch across the street and Larry had a chance to have some one on one time with the SIMM social worker, and it did help emotionally.   I don’t know – I hope so.  Crying can help and talking to someone external can let you reveal your true thoughts.  We need a miracle.  Anyway, our Comfort Inn is just a few blocks east on Santa Monica Blvd – and we spent the afternoon there.  Nicki (yay!) joined us there as she had been out and about from work early, and we got to hang out and chill.  Bought some wine at a wine store a block away, and then ordered in Tender Greens.   The hotel is what it is, but I miss home.  Tomorrow is the biggest day ahead of us – the first day of the drug, and then a day of monitoring.  Wish us luck, pray, anything.

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